Ghana Hemophilia Society. – Breaking the chains of hemophilia

Ghana Hemophilia Society

Breaking the chains of hemophilia

Intro to Ghana Haemophilia Society (G.H.S.)

In 1998, the family of Boakye (Mr.) painfully lost their four-year old son to haemophilia. The boy until his death had gone through various painful experiences because of the symptoms of a bleeding disorder. There was no known treatment to reduce the pain let alone cure the suspected disease until one day the inevitable happened; he died through a minor head injury that led to internal bleeding...

What is Haemophilia

Haemophilia is a genetic inherited blood related disorder that affects every one male or female child out of every 10,000 birth (1:10,000). This impairs the body’s ability to make blood clots, a process needed to stop bleeding. Those with mild haemophilia may only have symptoms after an accident or during surgery. Bleeding into a joint can result in permanent damage while bleeding in the brain can result in long term headaches, seizures, or a decreased level of consciousness. There are two main types of haemophilia: haemophilia A, which occurs due to less clotting factor VIII, and haemophilia B, which occurs due to less clotting factor IX. This results in people bleeding longer after an injury, easy bruising, and an increased risk of bleeding inside joints or the brain. They are typically inherited from a parent’s X chromosome with a nonfunctional gene. Rarely a new mutation may occur during early development or haemophilia may develop later in life due to antibodies forming against a clotting factor. Diagnosis is by testing the blood for its ability to clot and its levels of clotting factors.

Ghana Haemophilia Society marks 2024 World Haemophilia Day on April 17

World Haemophilia Day: Equitable access for all, recognising all bleeding disorders [Article]

Adom online Interview

Ghana Hemophilia Society marks World Haemophilia Day on April 17

About Bleeding Disorders

In people with bleeding disorders, the blood clotting process doesn’t work properly, with the result that they can bleed for longer than normal, and some people may experience spontaneous bleeding into joints, muscles, or other parts of their bodies which can lead to developmental and permanent mobility issues.

World Hemophilia Day

Theme: Access for all

Prevention of bleeds as the global standard of care

What we do

We Find & Fund

We are in search of opportunities to help as many youths with hemophilia as possible. We approach and fund all those who are in need.

We Educate parents and patients

Parents and patients are also educated about the condition so as to enable them have an understanding of how to manage haemophilia.

We Train health care providers

As part of the society’s responsibilities, health care providers from different parts of Ghana are offered special training to increase the number of health care persons to help in breaking the chain of haemophilia.

We Create Awareness

G.H.S. undertakes campaigns to spread and convey information about haemohilia to the public. This is usually done through events and ceremonies where the general public is invited. Also, the society carries out outreaches in various parts of the country to create awareness..